Archived Reports
RMSO archived reports, includes annual reports from 1982 to 2000, click here
RMSO NEPHO Publications
NEPHO occasional papers written by the RMSO, including more recent annual reports and newsletters, click here
Peer Reviewed Publications
Improvements in pregnancy outcome for women with diabetes. 2007 Annual Report of the Chief Medical Officer, Department of Health 2008:69.
Addor, M.-C., et al., EUROCAT member registries: Organisation and activities. Birth Defects Research (Part A), 2011. 91(S51-100).
Armstrong B, Dolk H, Pattenden S, Vrijheid M, Loane M, Rankin J, et al. Geographic variation and localised clustering of congenital anomalies in Britain. Emerging Themes in Epidemiology. 2007;4:14-22.
Arnaud C, White-Koning M, Michelson S, Parkes J, Parkinson K, Thyen U, et al. Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics. 2008;121(1):54-64.
Beckung E, Hagberg G, Uldall P, Cans C. Probability of walking in children with cerebral palsy in Europe. Pediatrics. 2008;121(1):e187-92.
Bell R. Trends in birthweight in the north of England. Human Fertility. 2008;11(1):1-8.
Bell R, Bailey K, Cresswell P, Hawthorne G, Critichley J, Lewis-Barned N. Trends in prevalence and outcomes of pregnancy in women with pre-existing type 1 and type 2 diabetes. BJOG: An International Journal of Obstetrics and Gynaecology. 2008;115(4):445-52.
Berrington, J., et al., Deaths in preterm infants: changing pathology over two decades. The journal of Pediatrics, 2011. In press.
Bythell M, Bell R, Taylor R, Zalweski S, Wright C, Rankin J, et al. The contribution of late termination of pregnancy to stillbirth rates in Northern England, 1994-2005. BJOG: An International Journal of Obstetrics and Gynaecology 2008;115(5):664-66.
Colver A. Study Protocol: SPARCLE - a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy. BMC Public Health. 2006;6:105.
Coulthard T, Hawthorne G. Type 2 diabetes in pregnancy: more to come? Practical Diabetes International. 2008;25(9):359-61.
Dadvand P, Rankin J, Shirley M, Rushton S, Pless-Mulloli T. Descriptive epidemiology of congenital heart disease in Northern England. Paediatric and Perinatal Epidemiology. 2008;23(1):58-65.
Dadvand, P., et al., Association between maternal exposure to ambient air pollution and congenital heart disease: a register based, spatio-temporal analysis. American Journal of Epidemiology, 2011.
Dickinson H, Parkinson K, McManus V, Arnaud C, Beckung E, Fauconnier J, et al. Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy. BMC Public Health. 2006;6:273.
Dickinson H, Parkinson K, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, et al. Self-reported quality of life of 8-12 year old children with cerebral palsy: a cross-sectional European study. Lancet. 2007;369:2171-78.
Dolk, H., et al., Ambient air pollution and risk of congenital anomalies in England, 1991-99. Occupational and Environment Medicine., 2010. 67: p. 223-27.
Dolk, H., et al., Socio-economic inequalities in cerebral palsy prevalence in the United Kingdom: a register based study. Paediatric and Perinatal Epidemiology, 2010. 24(2): p. 149-55.
Draper E, Rankin J, Tonks A, Abrams K, Field D, Clarke M, et al. Recreational drug use - a major risk factor for gastroschisis? American Journal of Epidemiology. 2008;167(4):485-91.
Fillingham A, Rankin J. Prevalence, prenatal diagnosis and survival of gastroschisis. Prenatal Diagnosis. 2008;28:1232-7.
Gainsborough M, Surman G, Maestri G, Colver A, Cans C. Validity and Reliability of the Guidelines of Surveillance of Cerebral Palsy in Europe for the Classification of Cerebral Palsy. Developmental Medicine and Child Neurology. 2008;50(11):828-31.
Garne E, Dolk H, Krageloh-Mann I, Holst Ravn S, Cans C, Group SC. Cerebral Palsy and congenital malformations. European Journal of Paediatric Neurology. 2008;12:82-8.
Garne, E., et al., Termination of pregnancy >24 weeks of gestation after pre-natal diagnosis of fetal abnormality in Europe. BJOG An International Journal of Obstetrics and Gynaecology, 2010. 117: p. 660-66.
Glinianaia S, Jarvis S, Topp M, Guillem P, Platt M, Pearce M, et al. Intrauterine growth and cerebral palsy in twins: A European multi-centre study. Twin Research and Human Genetics. 2006;9(3):460-66. Northern Survey of Twin and Multiple Pregnancy and Cerebral Palsy Survey.
Glinianaia S, Rankin J, Wright C. Congenital anomalies in twins: a register-based study. Human Reproduction. 2008;23(6):1306-11.Northern Congenital Abnormality Survey and Northern Survey of Twin and Multiple Pregnancy.
Glinianaia, S., J. Rankin, and e. al., Stillbirth and infant mortality in singletons by cause of death, birthweight, gestational age and birthweight by gestation, Newcastle upon Tyne 1961-2000. Paediatric and Perinatal Epidemiology, 2010: p. doi:10.1111/j.1365-3016.2010.01119.x.
Glinianaia, S., J. Rankin, and A. Colver, Cerebral palsy rates by birthweight, gestation and severity in North of England, 1991-2000 singleton births. British Medical Journal, 2010. doi: 10.1136/adc.2010.183939.
Hemming K, Colver A, Hutton J, Kurinczuk J, Pharoah P. The influence of gestational age on severity of impairment in spastic cerebral palsy. Journal of Pediatrics. 2008;153(2):203-8.
Hemming K, Hutton J, Bonelli S, Kurinczuk J. Intrauterine growth and survival in cerebral palsy. Archives of Disease in Childhood. 2008;93:121-26.
Hemming K, Hutton J, Glinianaia S, Jarvis S, Platt M. Differences between European birthweight standards: impact on classification of small-for-gestational-age. Developmental Medicine and Child Neurology. 2006;48:906-12.
Hemming V, Rankin J. Small intestinal atresia in a defined population: occurrence, antenatal diagnosis and survival. Prenatal Diagnosis. 2007;27:1205-11.
Heslehurst N, Lang R, Rankin J, Wilkinson J, Summerbell C. Maternal obesity in Pregnancy: A study of the impact of maternal obesity on NHS maternity services. BJOG: An International Journal of Obstetrics and Gynaecology. 2007;114(3):334-42.
Irving C, Basu A, Richmond S, Burn J, Wren C. Twenty-year trends in prevalence and survival of Down syndrome. European Journal of Human Genetics. 2008;16:1336-40.
Irving, C., et al., Changes in fetal prevalence and outcome for trisomies 13 and 18: a population-based study over 23 years. The Journal of Maternal-Fetal and Neonatal Medicine, 2010. doi: 10.3109/14767051003758879.
Jarvis S, Glinianaia S, Blair E. Cerebral palsy and intrauterine growth. Clinics in Perinatology. 2006;33:285-300.
Lawlor K, Welsh B, Mihaylov S, Jarvis S, Colver A. Qualitative study of physical, social and attitudinal environment for children with cerebral palsy. Pediatric Rehabilitation. 2006;9(3):219-28.
McConachie H, Colver A, Forsyth R, Jarvis S, Parkinson K. Participation of disabled children: how should it be characterised and measured? Disability and Rehabilitation. 2006;28(18):1157-64.
McManus V, Michelson S, Parkinson K, Colver A, Beckung E, Pez O, et al. Discussion groups with parents of children with cerebral palsy in Europe designed to assist development of a relevant measure of environment. Child: care, health and development. 2006;32:185-92.
McNally R, Colver A. Space-time clustering analyses of occurrence of cerebral palsy in northern England for births 1991-2003. Annals of Epidemiology. 2008;18(2):108-12.
McNally R, Rankin J, Shirley M, Rushton S, Pless-Mulloli T. Space-time analysis of Down Syndrome: results consistent with transient pre-disposing contagious agent. International Journal of Epidemiology. 2008;37:1169-79.
Parkes J, White-Koning M, Dickinson H, Thyen U, Arnaud C, Beckung E, et al. Psychological problems in children with cerebral palsy: A cross-sectional European study. Journal of Child Psychology and Psychiatry. 2008;49(4):405-13.
Parkes J, White-Koning M, McCullogh N, Colver A. Psychological problems in children with hemiplegia: a European multi-centre survey. Archives of Disease in Childhood 2008:10.1136/adc 2008. 151688.
Parkinson, K., et al., Pain in children with cerebral palsy: a cross-sectional multicentre European study. Acta Paediatricia, 2010. 99(3): p. 446-51.
Pearson, G., et al., Why children die: avoidable factors associated with child deaths. Archives of Disease in Childhood, 2010. doi: 10.1136/adc.2009.177071.
Pearson, G., M. Ward Platt, and D. Kelly, How children die:classifying child deaths. Archives of Disease in Childhood, 2010. doi:10.1136/adc.2009.177089
Pharoah P, Glinianaia S, Rankin J. Congenital anomalies in multiple births after early loss of a conceptus. Human Reproduction. 2009;24(3):726-31.
Platt M, Cans C, Johnson A, Surman G, Topp M, Torrioli M, et al. Trends in cerebral palsy among infants of very low birthweight (<1500g) or born prematurely (<32 weeks) in 16 European centres: a database study. Lancet. 2007;369:43-50.
Rankin J, Bush J, Bell R, Cresswell P, Renwick M. Impacts of participating in confidential enquiries. BJOG: An International Journal of Obstetrics and Gynaecology. 2006;113:387-92.
Rankin J. Congenital anomalies in the British Isles. In: Nicolopoulou-Stamati P, Hens L, Howard C, eds. Congenital Diseases and the Environment: Springer 2007:359-77.
Rankin J, Chadwick T, Natarajan M, Howel D, Pearce M, Pless-Mulloli, T. Maternal exposure to ambient air pollutants and risk of congenital anomalies. Environmental Research. 2009;109:181-87.
Rankin J, Silf K, Pearce M, Parker L, Ward Platt M. Congenital Anomaly and Childhood Cancer: A Population-Based Record Linkage Study. Pediatric Blood Cancer. 2008;51:608-12.
Rankin, J., et al., Congenital anomalies in children with cerebral palsy: a population-based record linkage study. Developmental Medicine and Child Neurology, 2010. 52: p. 345-51.
Rankin, J., et al., Maternal body mass index and congenital anomaly risk: a cohort study. International Journal of Obesity, 2010: p. 10.1038/ijo.2010.66.
Ray B, Ward Platt M. Mortality of twin and singleton live births under 30 weeks gestation: a population-based study. Archives of Disease in Childhood Fetal and Neonatal Edition 2008:10.1136/adc.2008.143016.
Surman G, Bonelli S, Chalmers J, Colver A, Dolk H, Hemming K, et al. UKCP: a collaborative network of cerebral palsy registers in the United Kingdom. Journal of Public Health. 2006;28(2):148-56.
Swamy R, Embleton N, Hale J. Sacrococcygeal teratoma over two decades: birth prevalence, prenatal diagnosis and clinical outcomes. Prenatal Diagnosis. 2008;28:1048-51.
Swamy, R. Survival at less than 24 weeks gestation: the hidden morbidity of non-survivors. Abstract accepted for presentation at The British Association of Perinatal Medicine and British Society of Paediatric Radiology Joint Session at The Paediatric Royal College Meeting, University of York, 31st March 2009.
Swamy, R. Survival at less than 24 weeks gestation: the hidden morbidity of non-survivors. Abstract accepted for presentation at The Paediatric Academic Societies Meeting, Baltimore May 2009.
Tennant, P., et al., 20-year survival of children born with congenital anomalies: a population-based study. Lancet, 2010. 375: p. 649-56.
Tripathi, A., et al., Preconception counselling in women with diabetes - a population-based study in the North of England. Diabetes Care, 2010. 33: p. 586-88.
Ward Platt M, Glinianaia S, Rankin J, Wright C, Renwick M. The North of England Multiple Pregnancy Register: five-year results of data collection. Twin Research and Human Genetics. 2006;9:913-18.Northern Survey of Twin and Multiple Pregnancy
Welsh B, Jarvis S, Hammal D, Colver A. How might districts identify local barriers to participation for children with cerebral palsy? Public Health. 2006;120(2):167-75.
White-Koning M, Arnaud C, Dickinson H, Thyen U, Beckung E, Fauconnier J, et al. Determinants of child/parent agreement in quality of life reports - a European study in children with cerebral palsy. Pediatrics. 2007;120(4):804-14.
Wren C, Reinhardt Z, Khawaja K. Twenty year trends in diagnosis of life-threatening neonatal cardiovascular malformations. Archives of Disease in Childhood Fetal and Neonatal Edition. 2008;93:33-5.
Young B, Rice H, Dixon-Woods M, Colver A, Parkinson K. A qualitative study of the health-related quality of life of disabled children. Developmental Medicine and Child Neurology. 2007;49:660-65.
